My husband thinks there is families who need help worse than us.  I tell him we are use to our situation now.  We tell anyone our story and they say it is heartbreaking, and we should apply for Extreme Home Makeover Home Edition.  Please read about my family and tell me your opinion on if you think we would qualify for help from ABC... Thank You so much for your time and input.HAVE A HAPPY AND HEALTHY DAY!! :) 

Our first born Steven Lee Stiles was 48 hours old when we rushed him back to the hospital. I told the doctors, "He has been a rag doll since we left here yesterday. I had to wake him up to force feed him, that's only been 3 oz and he spit up most of it!!  And I have only changed a few pee diapers.  Something is wrong!"    The response was the same as the half a dozen times I called with worry in the past 24 hours, "He's fine, he's in a sleep phase all newborn babies go through it."  Vital tests were done on him and all came back saying he was fine.  They wanted to see if he had a bladder infection, and wanted our permission to put a catheter in him.  I told them, "He's peeing fine.  He hasn't pooped since he was born!"  One of them rashly responded, "He had to of, we don't send them home until they do."  I said, "Get out his chart and look because I never saw any!" Someone was told to go get it.  But no one ever mentioned his chart to me. They didn't have to they wheeled in an x-ray machine instead.  It showed a blockage in his large intestine.  The impacted part was on the verge of bursting.  He very well could have died if I would have believed in the "sleep phase" excuses.  The next thing we knew our son and I were rushed to Mary Bridge Children's Hospital 100 miles away.  4 very stressful days into his 2 week stay at the Newborn Intensive Care Unit they told us he had Hirschsprung's Disease, neither of us had heard of it.  He was lacking nerves that made his intestine work.  If we wanted to take him home we would have to learn to enema him and do it 4 times a day to keep him pooping and alive.  At two months old he under went surgery and was there for another week.  His intestine comes out by his bellybutton now and he excretes into a colostomy bag. He turned 1 on January 19, 2007.  We found out in September after blood tests Steven's many allergies. He has a really high allergy to cat dander. Which we were told by neighbors, the woman before had a dozen cats in here. We even own a cat named Rebel, but I have pretty much confined him awayL.  He also has many food allergies; peas, bananas, oranges, wheat, rye, soy, pork, and beef… the worst includes; eggs, milk, and peanuts.  This special diet is one more expense we are finding hard to cover.  We have been surviving on one income for the past year, since I have stayed home to take care of Steven. We sold our second car last year to pay the rent after Steven was hospitalized.  Up until Justin changed jobs 7 months ago we were collecting food stamps.  Steven's condition is considered a hardship, so S.S.I. has been supplements our income up to $600, usually $20-40 lately.  Justin has worked some overtime and they say they overpaid us $1300 and we pay them now…?? Which I don't understand, but that is another story.  So Steven goes to see his surgeon this Thursday, hopefully to schedule the reattachment operation of his intestine to his bottom.  His Surgeon won't operate until his skin is clear, but with all these allergies his eczema is out of control.  I finally got Medicaid to fill this Elidel prescription; yeah it only took 3 weeks, typical.  My husband Justin and I met 3 years ago when I was living in Oregon taking care of my father who is blinded from glaucoma and Steven Johnson's.  When we found out we were expecting our first child we moved to S.W. Washington, where Justin grew up.  We had planned to move into and fix up Justin's childhood home. His father died of pancreatic cancer when Justin was 18 and his sister Keely was 4, he left 3 acres and the house on it to them.  No one has lived their in years, we expected a lot of work.  We went to the property and cried when we saw it falling to pieces.  The south wall was falling off away from the foundation.  A part of the roof had caved in.  There was tons of water damage and mold. Someone stole the pump to the well!! Doors were missing and most the windows were broke!  Even a nest of bees had made a home in a wall. We knew fixing the place would be a task, but we didn't anticipate that much damage.  So we moved in 8 miles away into a 1970something rental trailer, with plans to do what we can with what we can on the house.  I was planning to go back to work after our son would be born and we would make good head way on the house.  But as you have read, these past 15 months allowed nothing to be done on the house.  Our dream would be to fix up Justin's childhood home or rebuild there. We know families who receive such tremendous help from Extreme Makeover Home Edition usually have more children than us. We are just getting started with our family, and are scared to have more. I have a second cousin who was born with hirschprungs, so it may be genetic doctors say.  If we didn't have to pay rent to anyone, we put that money toward DNA testing to see if Hirschprung's would happen in our next children.  And if it came back positive, we'd pay to have a female embryo, so our baby would be 6 times less likely to be born with Hirschprungs. We would also move my dad up from California to take care of him.  I want my dad around his only grandchild while he can still see 5% and have an influence on Steven.  The Extreme Makeover Home Edition cast and the people who make it all happen are absolutely unbelievable.  We cry twice every Sunday, once in sadness for the family and again for the joy they give to needing families. It would be an unbelievable dream come true to our family if we were helped by this wonderful ABC show.  Our lives would be lived so happily ever after. 

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